My daughter Annalise was born prematurely at Rochester General Hospital at 36 weeks and two days. At that time, we started to do the genetic testing for Down Syndrome. We spent five weeks in the NICU there and she had a lot of different feeding issues. A few weeks after we came home, she had a reaction to her two-month shot—she started vomiting and going downhill. At this point, we had been diagnosed with her heart condition and we knew something was wrong, so we took her to Strong.
We had our consult with the GI, pediatric cardiology and the entire team. At that point, I was in a room with her, but we were notified of the Ronald McDonald House because they knew we would be there for a couple of weeks. They did the testing and that is when her Hirschsprung disease was diagnosed. We spent three weeks in the hospital and that was when we started using the Ronald McDonald House. We have a 2-year-old son, Braxton, so he was able to use the sibling clubhouse and I usually stayed with her in her room, but Ronald McDonald House was great—they brought meal vouchers to the room so we didn’t have to worry.
My husband and I would just go up there and sit and eat dinner and watch TV away from the wires and everything. We spent three weeks there and then we went home—that was about August or September. Annalise ended up back in the hospital for another few days and then we came home. In November, she had her open-heart surgery. That is when we used the House Within the... Read More